So you have heard people talk about this upcoming “Run Up for Downs” race and you are wondering if you should participate. Let’s see if I can help make the decision easier for you. For one, it’s an evening run and you don’t have to get up early. Second, all money raised will benefit LOCAL families. Lastly, you will get the chance to meet Lilybean and some of her awesome buddies and see firsthand how much more alike than different they really are. Remember…this is much more than just a 5K race…this is a full awareness event that you will not forget!
So let’s back up a little…did you read that right? This is an evening run? Who does that? Well…we do:) Say you have another race you want to do that morning…or a training run to get in. Or maybe you just flat out want to sleep in! The kids 1 mile fun run will begin at 4:00 P.M., followed by the 3.21 Run/Walk at 4:15/4:30 P.M. (will have exact times as the race gets closer). The band Trademark will begin performing around 3:30 and performing until 8:00 P.M. There will be food provided by a few different local restaurants and drinks (free to all participants). There will also be games and jump zones for the kids. With the picturesque view of the Reservoir as the backdrop….this will be a fun family night out that you will not forget!
Have you ever ran a race and wondered where the money went? With the Run Up for Downs…there is no wondering. 100% of all proceeds go to the Little Light House of Central Mississippi and the Central Mississippi Down Syndrome Society. You may be asking yourself…why these two non-profits? Let’s start with the Little Light House. When Lily was born we put her on the waiting list at the Little Light House and were told it could be up to two years. Luck behold…10 months later (August of 2013)…Lily attended her first class at the LLH. Many reading this may know that the LLH provides Physical, Speech and Occupational Therapy within a Bible-based curriculum. I have discovered from talking with friends lately that so many people that are close to us were unaware that these services are provided free of charge and without any government funding. Lily attends class every Monday-Thursday from 8:15 A.M. to 1:15 P.M. The Little Light House and it’s amazing staff and volunteers have been instrumental in Lily’s development and progress over these last few months.
In addition to the amazing care the LLH has given Lily, they have also been key to us as parents. Once a month they host parent meetings in which we get to not only meet with other parents, but also learn some significant tips/techniques from the therapists and teachers. One technique we learned from the OT while Lily was on the waiting list, we are actually using today at home. This simple technique is using an ice cube tray to put Lily’s snacks in which forces her to use her “pincher” fingers to grab each snack. Such a simple concept that we would have never thought about trying that has had a huge impact on Lily’s development with OT.
You may have heard about the Central Mississippi Down Syndrome Society with their annual Buddy Walk that they host in October. What you don’t get to hear about CMDSS are the things they do for families like us behind the scenes. When Lily was born and we were told about her diagnosis…not only were Kristin and I in a state of shock and going through a range of emotions, but we also didn’t know that much about Down syndrome. Before we left the hospital, we were given this large 3 ring binder that had the CMDSS logo on the cover. I’m not going to lie….I put it to the side and didn’t give it a second thought. When we got home, curiosity struck me and I opened it up to a poem titled “Welcome to Holland.” Check out the poem below in a beautiful Youtube video:
I was intrigued after reading this poem so I started flipping through the binder that really served as an to the simple question, “You are the parent to a child with Down syndrome…now what?” On top of this New Parent’s binder, they have arranged several new parents dinners/events to where we have gotten to meet and engage with other parents that have a child Lily’s age. It’s one thing to read about another parent going through what you are going through…it’s another thing to meet and talk with other parents that live just around the corner. The support CMDSS has provided our family has been absolutely incredible and something we could never thank them enough for.
So you have read about why you should run local and also why evening runs rock…but what about some of the superstars you can meet? Lilybean WILL be present giving free hugs and blowing lots of free kisses. Tons of her buddies and fellow superstars from the Little Light House and Central MS Down Syndrome Society will also be there and you may even score a hug or two if you are lucky. With the addition of the Buddy Up 3.21 Teams…you may even be lucky enough to have some of these superstars running/walking with you during the 3.21 Run/Walk. If you haven’t had the chance to meet someone with Down syndrome, I really hope that you will give this event a chance so that you can discover how much of an asset Lily and her friends will be and are to our society and community and also how much more ALIKE than different they are.
Wow…a lot of information to take in huh? So why again should you participate in the 2nd Annual Run Up for Downs and share the link about the run (paste this link into your Facebook or Twitter post : http://runnningforlily.com/3-21-run-up-for-downs/register/)? Let’s recap..you get to sleep in = SCORE! You get to support two non-profits that directly benefit LOCAL families = Double score! Plus you get to meet some amazing people whose smile and hug will absolutely make your day:) We hope that you will join us for the 2nd Annual Run Up for Downs and help make our goal of 1,000 participants and doubling the checks we wrote last year to our two race beneficiaries a reality!
Click Here to Register today!